CPBF Parent-Partner Network (PPN)

CPBF has established a national network of parents who work or volunteer in NICUs across Canada, fostering collaboration and the exchange of information on quality improvement initiatives and projects.

This group serves as a valuable resource, enabling members to contribute effectively to their respective NICUs by sharing best practices and innovations.

Additionally, CPBF actively supports these parents in knowledge capacity building by providing education, participating and presenting at various professional conferences, meetings, and workshops across Canada, including Evidence-based Practice for Improving Quality (EPIQ), Family Integrated Care (FICare), and Canadian Association of Neonatal Nurses (CANN), enhancing the knowledge and practices within the NICU community.

CPBF advocates for the role of a Parent Partner to be on every NICU team at every hospital across Canada.

What is RSV?

Respiratory syncytial virus, or RSV, is a virus that causes cold and flu-like illness. For most healthy adults, RSV might feel like a cold. But RSV in babies and young children can be more serious.
How common is RSV in babies?

RSV is very common in babies and children. Almost all babies and children will have had an RSV infection by the time they are 2. RSV is most common in the fall and winter months.
How do babies get RSV?

The RSV virus spreads through droplets produced by coughs and sneezes. The most common way we get sick from RSV is by touching our nose, eyes and mouth with germs on our hands. RSV can live on surfaces for many hours. Premature babies are especially at risk of RSV because they have trouble fighting infections.
Can I prevent my baby from getting RSV?

Most babies and young children will get RSV sometime during the first two years of life. It is important to protect all babies, especially premature babies, from RSV as best we can during their first winter. Here are some ways you can help prevent your baby from getting RSV: Always wash your hands with soap and water before you touch your baby. Wash your hands after you blow your nose, sneeze, or cough. Do not smoke or let others smoke around your baby or in your home. Keep your baby away from anyone who is sick. If you are sick, do not kiss your baby. Keep your baby away from crowded places such as daycare centers, shopping malls, and large family gatherings. Ask your healthcare provider if your baby should get RSV prevention medicine
How sick can my baby get from RSV?

RSV will cause a bad cold for most babies. Some babies will get very sick from RSV. Babies born very prematurely, with breathing problems, certain heart problems or other medical conditions, are at the highest risk of getting very sick. RSV can cause pneumonia and bronchiolitis, serious lung and airway complications. If this happens, most babies need to be admitted to the hospital, and some need oxygen or breathing help.
What are the signs and symptoms of RSV in babies?

Some babies with RSV will only have cold symptoms like a runny nose. Other symptoms of RSV include: Fever Cough Problems with breathing (fast breathing or working hard to breathe) Whistling or wheezing noise when breathing Trouble feeding
What should I do if my baby gets sick with a cold?

Always call your baby's healthcare provider if your baby seems sick, is not eating well, is irritable, and has a runny nose If your baby has a fever or a cough, go to the hospital If your baby looks blue, has difficulty breathing, or stops breathing, call 911